So..My wife was diagnosed with Huntingtons disease yesterday.

[DaGh0st 5,000+ posts]

Sorry to hear this bro.

my best wishes for your family.

 

[SocMunky 10+ year member]

everything will work out fine, it always does, theres a reason for everything...
but on another note, i was under the impression when you get married and want to have children you goto a family health place and they do blood tests to make sure you dont have any hereditary dieases and whatnot... just curious is all, like diabetes is prevelant in my family so we're forced to eat healthy to try and stem it off

Yeah, but its not a disease that you are normally tested for, as they usually do the testing anonymously. Insurance companies will drop you like a rock if they find out you have it, as its very expensive to treat. (They claim it as a pre-existing condition) For example the study we are looking at uses a naturally occurring over the counter drug, but in the quantity it takes, it'd be 1g per month roughly. Plus its a dna test, so unless I was questioning the paternity, they probably would not have run. I know she had to do that sugar test for diabetes back then, but its been 7 years, don't recall what all else they tested for now. //content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif

 

[bigbangtheory 5,000+ posts]

Sorry to hear that man. Keep your head held up high and try to enjoy life as best as possible. I know it will be hard and have it's down times, but all you can do is push foward. God bless and my heart goes out to you and your loved ones. Peace!

 

[brtnboarder3241 5,000+ posts]

im very sry to hear u and ur wife and family will def be in my prayers..

 

[psych0ticnemes1 5,000+ posts]

Good luck bro... My thoughts and prayers are with you

 

[Prowler573 5,000+ posts]

Reson8 - I will add my wishes and prayers for you and yours to the already growing list of the same.

I'm certain that likely, for the most part, you and your wife are probably feeling like someone just knocked the wind out of you, snatched the floor out from underneath your feet, and kidnapped your children all at once. I cannot imagine it being anything less than overwhelming to get news like this.

Take heart, however, because (for what it's worth) you should know that as much as we're all asshats here from time to time....some more often than not....you do have the support of all the regulars here.

Thinking of Montel Williams and his day-to-day struggle to have some sort of "normal" life is a great example of how to win the mental battle that inevitably comes into play with news of this nature.

Another that comes to mind quickly is Michael J Fox and his battle with Parkinson's that he is refusing to allow to rule him.

If I might make a suggestion (at the risk of sounding exactly like what I am ~ a shrink's kid)....

The main thing to keep in mind here is what you have rather than what might be lost in the near or forseeable future.

TODAY you have each other.

TODAY you have your daughters.

TODAY you have the support of your family and friends.

TODAY you can walk into whatever room your wife is in, kiss her gently on the forehead, and tell her how incredibly lucky you are for having her as such an integral part of your life.

Don't lose sight of the prize and dwell on how things might become down the road because you have both no way of knowing for certain how things will unfold as the days progress and even if you did you have no real degree of control over it happening one way or the other.

Keep all of the good things, the wonderful things, even the things that annoy the crap out of you but make you love her all the more because of them in the forefront of your brain.

Don't dwell on what you might lose if the disease progresses to a point to where she is in the same sort of condition as her father.

Dwell on all the things that made you love her in the first place - that made you man up and scrounge for the courage to ask her to be your wife - that made you want to be with her for the rest of forever and raise a family together. THOSE are the ties that bind and the only things that matter at the end of the day.

Again - you and yours will be in my prayers and I wish you all the best (for what that's worth reading it on some online car audio discussion board) //content.invisioncic.com/y282845/emoticons/biggrin.gif.d71a5d36fcbab170f2364c9f2e3946cb.gif

 

[Imtjnotu 5,000+ posts]

**** bro i appologize and sorry to hear that..//content.invisioncic.com/y282845/emoticons/crap.gif.7f4dd41e3e9b23fbd170a1ee6f65cecc.gif

 

[billabongcr 5,000+ posts]

sorry man..you have my prayers.

 

[seg_representin 10+ year member]

My prayers are with you, your wife, and your family. I hope everything works out. Just fight and stay strong and don't let it control your lives. My friends mom had this disease, but i know they are working on a cure for it. Live everyday to the fullest because you don't know when you won't have it anymore.

 

[bonesninja 5,000+ posts]

everything will work out fine, it always does, theres a reason for everything...
but on another note, i was under the impression when you get married and want to have children you goto a family health place and they do blood tests to make sure you dont have any hereditary dieases and whatnot... just curious is all, like diabetes is prevelant in my family so we're forced to eat healthy to try and stem it off

nope....i'm married and we didn't have to have any tests done.

 

[Fast1one 10+ year member]

Leave it to prowler to have the deepest post in the thread...

Good luck with everything man, I'm sure you will do fine. Always focus on the postives //content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif

 

[9512ds 5,000+ posts]

Sorry to hear about this man. Truly upsetting.

 

[SocMunky 10+ year member]

Reson8 - I will add my wishes and prayers for you and yours to the already growing list of the same.
I'm certain that likely, for the most part, you and your wife are probably feeling like someone just knocked the wind out of you, snatched the floor out from underneath your feet, and kidnapped your children all at once. I cannot imagine it being anything less than overwhelming to get news like this.

Take heart, however, because (for what it's worth) you should know that as much as we're all asshats here from time to time....some more often than not....you do have the support of all the regulars here.

Thinking of Montel Williams and his day-to-day struggle to have some sort of "normal" life is a great example of how to win the mental battle that inevitably comes into play with news of this nature.

Another that comes to mind quickly is Michael J Fox and his battle with Parkinson's that he is refusing to allow to rule him.

If I might make a suggestion (at the risk of sounding exactly like what I am ~ a shrink's kid)....

The main thing to keep in mind here is what you have rather than what might be lost in the near or forseeable future.

TODAY you have each other.

TODAY you have your daughters.

TODAY you have the support of your family and friends.

TODAY you can walk into whatever room your wife is in, kiss her gently on the forehead, and tell her how incredibly lucky you are for having her as such an integral part of your life.

Don't lose sight of the prize and dwell on how things might become down the road because you have both no way of knowing for certain how things will unfold as the days progress and even if you did you have no real degree of control over it happening one way or the other.

Keep all of the good things, the wonderful things, even the things that annoy the crap out of you but make you love her all the more because of them in the forefront of your brain.

Don't dwell on what you might lose if the disease progresses to a point to where she is in the same sort of condition as her father.

Dwell on all the things that made you love her in the first place - that made you man up and scrounge for the courage to ask her to be your wife - that made you want to be with her for the rest of forever and raise a family together. THOSE are the ties that bind and the only things that matter at the end of the day.

Again - you and yours will be in my prayers and I wish you all the best (for what that's worth reading it on some online car audio discussion board) //content.invisioncic.com/y282845/emoticons/biggrin.gif.d71a5d36fcbab170f2364c9f2e3946cb.gif

Wow. Just wow man. I appreciate it, I really do. A lotta good things to think about, and all very true. We feel stunned really. We went with her family, her uncle, his wife and their son. We were all pretty much positive that it was him, he's just a goofy mofo. I had to be the person to sit in the room with the people when they got their results. Uncles son came clean, which was cool. The doc said only one person in the four had come up positive, and I felt soooo relieved to here that, then I saw my wifes results sticking out, and they were going over her motor tests and I remember sitting there in disbelief that she was the one who was testing positive for the repeating gene. I don't really even remember the convo she had, I was sooo floored. We both feel a bit better today, as really, nothing has changed. She's had this condition all her life and never known. She doesn't become a different person now just because she knows about it. But wow, I'm printing out your post and keeping it, I think it'll help in the days ahead to focus on those things, rather than the bad. //content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif

 

[luvinthebass 5,000+ posts]

omg, sorry to hear that, i will pray for you and her, and somethings just happen and some just can't be explained and cured, i remember my grandma and aunt were healthy all their lives and then when they got older they were hit with cancer out of nowhere, and everyone i've been close to has passed on, maybe it was there time to go or they just wanted out of their pain and misery and go to a better place but remember the memories that you and your wife had will be forever, they will never die and think positive about things in your life and enjoy every second of it as much as possible cuz you never know when you gonna go.

 

[dvrmstrng 5,000+ posts]

not to change the subject but my grandfather has lou gherigs (sp) which means that my myself (20) and my brothre (17) both have a 50% chance of having the gene...if we have the gene then theres a 50% chance that its dominant...im about to be 21 and still refused to be tested for it...because honestly i dont want to know..just gotta live life, and be happy....i mean you got yourself a beautiful wife and 2 great kids im sure...look how good things are going