So..My wife was diagnosed with Huntingtons disease yesterday.

[SocMunky 10+ year member]

Life sucks. //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif

She's going in for a retest today, but I doubt it'll change things.

Info for you all not in the know. Keep in mind its hereditary, so both my daughters could have it as well.... //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif

http://en.wikipedia.org/wiki/Huntington's_disease

Click to read more...

 

[SocMunky 10+ year member]

Sorry to hear that //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif Any thing they can do for it?

Not really, no known cure. There is a study out that is using a drug to slow the onset of the symptoms that we are going to try and be a part of. Otherwise all they can do is try and treat the symptoms as best as they can. She got it from her dad, and he's just a mess right now, thats what we fear most I think, is that she will end up like him. He can't talk, can't even stand up, basically invalid and trapped in his own mind.

Fuck, I need a drink.

 

[bk12321 10+ year member]

Sorry to hear that //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif Any thing they can do for it?

There isn't a cure for it. Just "help/temporary treatment" as Reson said.

And i'm really sorry to hear that. Stuff like this happens... you can only play the cards that are dealt to you.

I suppose you could be as optimistic about the whole situation as you can, it's not a terminal disease.

 

[DejaWiz 5,000+ posts]

My sincerest wishes and thoughts go out to you and your family, Reson8.

 

[Louisiana_CRX 5,000+ posts]

Sorry to hear this //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif

 

[SocMunky 10+ year member]

There isn't a cure for it. Just "help/temporary treatment" as Reson said.
And i'm really sorry to hear that. Stuff like this happens... you can only play the cards that are dealt to you.

I suppose you could be as optimistic about the whole situation as you can, it's not a terminal disease.

No, its not terminal thankfully, but it will be hell. We talked about that last night. Life happens. People with worse things have gone on living their lives, we can certainly do the same. I mean, for example, look at montel williams. Mofugger has MS, and he's fighting through it and refusing to let it dominate his life. A good example for her I said.... Its gonna affect her, sooner or later, but no one knows or can predict with what severity or when it will happen. In all honesty, I am more worried about our kids, they will not test them until they are 18, so I have 11 and 7 years of waiting, and not knowing to have to go through.

 

[bonesninja 5,000+ posts]

i pray for your family to have the strength to push foward

 

[SocMunky 10+ year member]

Thanks everyone, it helps. It was just such a shock, I don't think its all really sunk in for me yet. We all expected her uncle to be the person diagnosed, he's got other issues going on. Which is why we are retesting just to verify that no results were mixed up. Although its very unlikely they were....

 

[snoopdan 5,000+ posts]

Sorry to hear, I understand this type of subject quite well and im sure you'll manage well. Personally, im a cancer survior as well as having both hips replaced and on the state of kentucky liver transplant list. I beat the odds of it running my life, and if a total screwup like me can do it, im sure other normal people can manage as well. You gotta take an optimistic look at it, otherwise it will try to run your life. I was listed as a terminal patient in 4/03 but as you can see, im still around today //content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif I hope ya the best.

 

[cpierce 5,000+ posts]

Very sorry to hear that:crap:

 

[SocMunky 10+ year member]

Sorry to hear, I understand this type of subject quite well and im sure you'll manage well. Personally, im a cancer survior as well as having both hips replaced and on the state of kentucky liver transplant list. I beat the odds of it running my life, and if a total screwup like me can do it, im sure other normal people can manage as well. You gotta take an optimistic look at it, otherwise it will try to run your life. I was listed as a terminal patient in 4/03 but as you can see, im still around today //content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif I hope ya the best.

Holy crap! Now THATS what I call having it tough! Glad you were able to beat it, that definetly gives me some hope that we can still find a way to deal with this.

//content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif

 

[xpl0it 10+ year member]

Life sucks. //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif
She's going in for a retest today, but I doubt it'll change things.

Info for you all not in the know. Keep in mind its hereditary, so both my daughters could have it as well.... //content.invisioncic.com/y282845/emoticons/frown.gif.a3531fa0534503350665a1e957861287.gif

http://en.wikipedia.org/wiki/Huntington's_disease

Life does NOT ****, we are all lucky to live. I will pray for her.

 

[Twistid 5,000+ posts]

everything will work out fine, it always does, theres a reason for everything...

but on another note, i was under the impression when you get married and want to have children you goto a family health place and they do blood tests to make sure you dont have any hereditary dieases and whatnot... just curious is all, like diabetes is prevelant in my family so we're forced to eat healthy to try and stem it off

 

[CaliforniabOY5 10+ year member]

im sorry man, this really is a sad day when we hear one of us e-friends is going through a something like this. . . yes we hear stories of people being broke and thier system was stolen, minor things in life really but something like this is worlds apart. It is sad to see no known cure and that is is rare. Your family will be in my prayers, best wishes.

 

[SocMunky 10+ year member]

Life does NOT ****, we are all lucky to live. I will pray for her.

Good point. I'll rephrase that. Life is mildly aggravating! //content.invisioncic.com/y282845/emoticons/smile.gif.1ebc41e1811405b213edfc4622c41e27.gif